Taking a few moments because I know the whole family want's to know WTF is going on. Well I am asking myself the exact thing. My nervous breakdown aside here is how our last few day's have gone. Obviously we have spent the last 3 weeks stressing. We have an MD, a neurosurgeon, and a Dr. of Internal Medicine and Oncology that tell us without a doubt, Tori has Papillary Thyroid Cancer. We end up choosing to have surgery now at Albany Med just because we need to get the ball rolling on all these different illnesses. Tuesday and Wednesday she is scheduled for pre op testing. The Oncologist wants one more scan to see if there are changes re: any growth, since the last one. Thursday we get a call from the Oncologist, the scan they does not show anything ??????? Why??? She does not know. We call her MD because he gets copies of everything...He does not know what is happening. So after a few hours of debate it is decided not to have surgery Friday morning. Before the surgery was scheduled she already had an appointment Saturday at Albany Med for a visit with the Neurosurgeon and it is decided that she should have all new testing done at Albany med. Friday afternoon, Tori spikes a fever, her ears and throat start hurting and by bedtime she is really sick. So Albany Med say's no testing until we find out what's wrong. We end up instead going to Saratoga ER to find out she has an ear infection, an upper respiratory infection and a sinus infection. The sinus infection alone will hold things up due to the Sinus disease she has had for so many years makes it really tough to clear up. Bottom line is no testing till she has had another course of antibiotics.
So we go back to hanging in limbo again and waiting some more. Heather told me last night she really thinks we need to go back to our original decision and take her to Boston because we just don't know which way to turn and don't feel like any progress is being made. In the mean time Tori gets sicker and sicker. Her weight loss is now up to about 42 pounds and I hate what I am thinking but I am so horribly exhausted from this whole past 9 months of all this that I am having a real problem being the positive person I try to be and can't stop from wondering if she is going to get through this or not at the rate we are going.
I'm sorry, I don't mean to be so negative but truly enough is enough.
I will post when she is better enough to start over and let you know what we are going to do. I think I am inclined to agree with Heather, let's revert back to the original plan, get her to Boston and pray we get better help because I am feeling truly negative about what is going on here .